Sunday, September 30, 2012

The After Effects

I was born with epidermolysis bullosa. More simply put, layers of skin on my legs were not fully developed when I was born. Eventually my legs healed, but not without leaving some trace. I have scars that run from my toes to my knees. When I was in elementary school, I was very self-conscious about my legs. I never liked to wear shorts because I was afraid of what people would think. When we went to assemblies and had to sit on the ground, I would always sit criss-cross-applesauce to try to hide the scars. It usually worked, but sometimes classmates would ask me what happened and I would tell them, unwillingly.

I do not know when, but eventually I stopped caring about my scars. Today, I go on for days not realizing that the scars are there. They are just a part of who I am. Occasionally people ask me about my legs. Before, I would not want to tell them because I was embarrassed, but now I do not want to tell them because I get tired of repeating the story. Sometimes people tell me that my legs are really dry and I just agree with them, not wanting to tell the story for the hundredth time. However, when I do tell people my story, I feel extremely blessed. Some children never grow out of the condition and have to live with it their entire life. Others never survive pass infancy. My legs are a constant reminder to me that God has blessed me with this life and without Him, I cannot do anything. Since my scars look like burns, my friends and family tell me that I should tell people that I saved my little sister from a burning building. I have yet to try it. 

3 comments:

  1. I really enjoyed reading this story you shared. It was very personal, but straightforward and I really liked your optimistic outlook on it- as a blessing. It is apart of you, but you don't let it define you- and that is really admirable.
    One thing you could add is perhaps a more satisfying conlusion. For me, this article ended rather abruptly for such a personal topic. Maybe you could include a few more sentences about how it has affected you, or how you view the condition as a whole. However, I really liked your post- it was really moving and unique, and seemed to have a voice of its own.

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  2. I really liked how your post was personal, yet effective. I especially enjoyed the last few lines of your post - it was inspiring. I also learned about something new: epidermolysis bullosa. You taught me something academic and gave me a different outlook on life, a new appreciation for it :)

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  3. When I read this I felt like I was intruding on something private. I think this was very well-written and the way you described everything actually makes me a bit envious (is that bad?) I think the ending is great also, and I really enjoyed the feeling that you were letting us into a really personal secret.

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